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Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.

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Media Room

Press Releases

July 25, 2013
Canadians affected by ultra-rare disorder urge governments to fund life-saving medication

March 7, 2013
aHUS Canada applauds approval of first treatment for fatal, ultra-rare disease affecting children and adults

February 27, 2014
Two Ontarians living with ultra-rare disease urge government officials to provide equitable access to life-saving treatment

June 10, 2014
Patient group urges Ontario to make saving lives a priority 

February 25, 2015
Thousands of Ontarians support ultra-rare disease group’s plea for public funding of life-saving drug

February 16, 2016
The Pan Canadian Pharmaceutical Alliance (pCPA) has ended negotiations with Alexion.

Fact sheet
aHUS Fact Sheet – as of March 2015

March 2016
Ontario Exceptional Access Program Criteria
Soliris aHUS Ontario EAP Criteria March 2016

Brochure
aHUS Brochure – Bilingual

 

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ABOUT US

In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.

CONTACT US

info@ahuscanada.org

 
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