Press Releases
July 25, 2013
Canadians affected by ultra-rare disorder urge governments to fund life-saving medication
March 7, 2013
aHUS Canada applauds approval of first treatment for fatal, ultra-rare disease affecting children and adults
February 27, 2014
Two Ontarians living with ultra-rare disease urge government officials to provide equitable access to life-saving treatment
June 10, 2014
Patient group urges Ontario to make saving lives a priority
February 25, 2015
Thousands of Ontarians support ultra-rare disease group’s plea for public funding of life-saving drug
February 16, 2016
The Pan Canadian Pharmaceutical Alliance (pCPA) has ended negotiations with Alexion.
Fact sheet
aHUS Fact Sheet - as of March 2015
March 2016
Ontario Exceptional Access Program Criteria
Soliris aHUS Ontario EAP Criteria March 2016
Brochure
aHUS Brochure – Bilingual