September 24, 2019 will mark the 5th annual aHUS Awareness Day, created by the aHUS Alliance to raise awareness for the rare disease atypical HUS. People affected by aHUS face many challenges and greatly benefit from support of friends, family, and their community which led to the
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A program called the aHUS Patient Input Program was initiated in September 2014 and funded by Alexion Pharma Canada. Many aHUS patients and caregivers across Canada participated in the first three waves of interviews which were a great success. Thank you again for your help. The results of the 2014, 2015, 2016 interviews have been summarized and the key findings are posted on our website: ...
Although aHUS is an ultra-rare condition, there are others just like you across Canada who are fighting this disease. aHUS Canada wants you to know that you are not alone. aHUS patients and families in Canada share their stories… »Read more