aHUS Canada, ENG version

aHUS Awareness Day: September 24, 2016!

The second International aHUS Awareness Day is September 24, 2016. The aHUS Alliance, an international group of atypical HUS patient organizations, is dedicating this day to the issues aHUS patients are facing and sharing information and insights into Atypical Hemolytic Uremic Syndrome. Read... » Read More

 

Requesting participants for the aHUS Patient Input Program 2016 (HONORARIA PROVIDED)

A new program in Canada called the aHUS Patient Input Program was initiated in September 2014 and is funded by Alexion Pharma Canada Corp.  Many aHUS patients and caregivers across Canada participated in the first two waves of interviews which were a great success. Thank you again for your help. The results of the 2014 interviews have been summarized and the key findings were shared at our 2015 patient conference...

Act now!

Click here to email your Premier and Health Minister and ask them to fund treatment for aHUS.

Click here to use our petition to call on government to fund eculizumab for aHUS (ONTARIO, ALBERTA & B.C. ONLY)

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Get Involved!

Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.

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Meet the Community

Although aHUS is an ultra-rare condition, there are others just like you across Canada who are fighting this disease. aHUS Canada wants you to know that you are not alone. aHUS patients and families in Canada share their stories… »Read more

 

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Stay connected with the aHUS community in Canada! To receive info and updates from aHUS Canada, sign up here:

ABOUT US

In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.

CONTACT US

info@ahuscanada.org