September 24, aHUS Awareness Day

Sept 24, 2020 is the 6th annual aHUS awareness day which was created by the aHUS Alliance. For more information about the day visit the Alliance website:

This years theme is “the key to wellness and well-being” while living with aHUS! Once again Jeff Schmidt has created a video with slides of aHUS patients... » Read More


Toronto Complement Conference March 6&7, 2020


Join Scientists, clinicians, allied health professionals and trainees from across the globe at the international ...

Act now!

Click here to email your Premier and Health Minister and ask them to fund treatment for aHUS.

Click here to use our petition to call on the government to fund eculizumab for aHUS (ONTARIO, ALBERTA & B.C. ONLY)



Get Involved!

Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.


Meet the Community

Although aHUS is an ultra-rare condition, there are others just like you across Canada who are fighting this disease. aHUS Canada wants you to know that you are not alone. aHUS patients and families in Canada share their stories… »Read more



Stay connected with the aHUS community in Canada! To receive info and updates from aHUS Canada, sign up here:


In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.