aHUS Awareness Day: September 24, 2017

 The third International aHUS Awareness Day is September 24, 2017. The aHUS Alliance, an international group of atypical HUS patient organizations, founded this day three years ago to bring awareness to the issues aHUS patients are facing and sharing information and insights into Atypical Hemolytic Uremic Syndrome.

Atypical Hemolytic Uremic Syndrome is an... » Read More


Thrombotic Microangiopathy Symposium: Through the Lens of aHUS


The aHUS Alliance is pleased to announce that a TMA symposium:Through the Lens of aHUS will be held in Boston on...

Act now!

Click here to email your Premier and Health Minister and ask them to fund treatment for aHUS.

Click here to use our petition to call on government to fund eculizumab for aHUS (ONTARIO, ALBERTA & B.C. ONLY)



Get Involved!

Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.


Meet the Community

Although aHUS is an ultra-rare condition, there are others just like you across Canada who are fighting this disease. aHUS Canada wants you to know that you are not alone. aHUS patients and families in Canada share their stories… »Read more



Stay connected with the aHUS community in Canada! To receive info and updates from aHUS Canada, sign up here:


In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.