February 28, 2018 is Rare Disease Day!

Rare Disease Day will be marked around the world on February 28 and patients and their families, medical professionals, researchers, government officials, and companies developing treatments for rare diseases are encouraged to join together to focus attention on rare diseases as a public health issue.   The aHUS Alliance ... » Read More


Requesting participants for the aHUS Patient Input Program 2017

A program called the aHUS Patient Input Program was initiated in September 2014 and funded by Alexion Pharma Canada. Many aHUS patients and caregivers across Canada participated in the first three waves of interviews which were a great success. Thank you again for your help. The results of the 2014, 2015, 2016 interviews ​ have been summarized and the key findings are posted on our website: ...

Act now!

Click here to email your Premier and Health Minister and ask them to fund treatment for aHUS.

Click here to use our petition to call on government to fund eculizumab for aHUS (ONTARIO, ALBERTA & B.C. ONLY)



Get Involved!

Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.


Meet the Community

Although aHUS is an ultra-rare condition, there are others just like you across Canada who are fighting this disease. aHUS Canada wants you to know that you are not alone. aHUS patients and families in Canada share their stories… »Read more



Stay connected with the aHUS community in Canada! To receive info and updates from aHUS Canada, sign up here:


In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.