Rare Disease Day is right around the corner. The world will join together on February 28, 2017 to raise awareness for rare diseases. The theme for the upcoming Rare Disease Day is “Research”.
Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care.... » Read More
A new program in Canada called the aHUS Patient Input Program was initiated in September 2014 and is funded by Alexion Pharma Canada Corp. Many aHUS patients and caregivers across Canada participated in the first two waves of interviews which were a great success. Thank you again for your help. The results of the 2014 interviews have been summarized and the key findings were shared at our 2015 patient conference...
Although aHUS is an ultra-rare condition, there are others just like you across Canada who are fighting this disease. aHUS Canada wants you to know that you are not alone. aHUS patients and families in Canada share their stories… »Read more