The Pan Canadian Pharmaceutical Alliance (pCPA) has ended negotiations with Alexion.

The quest to get public funding of the drug eculizumab (Soliris) for aHUS patients in Canada (the only pharmaceutical treatment for them) has been ongoing since July 2013. After two years of advocating, the Ontario Ministry of Health and Long Term Care decided... » Read More

 

2016 aHUS Global survey

The aHUS Alliance, an umbrella group of 15 nations with aHUS patient groups, launched a worldwide survey of aHUS patients and caregivers to mark Rare Disease Day 2016 (29 February).  Members within the aHUS Alliance think meaningful information from the 2016 aHUS global poll can provide researchers, clinical trial investigators and industry a better perspective of how to reach physicians and their patients.  The survey also was designed to help patient groups better understand the needs of...

Act now!

Click here to email your Premier and Health Minister and ask them to fund treatment for aHUS.

Click here to use our petition to call on government to fund eculizumab for aHUS (ONTARIO, ALBERTA & B.C. ONLY)

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Get Involved!

Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.

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Meet the Community

Although aHUS is an ultra-rare condition, there are others just like you across Canada who are fighting this disease. aHUS Canada wants you to know that you are not alone. aHUS patients and families in Canada share their stories… »Read more

 

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Stay connected with the aHUS community in Canada! To receive info and updates from aHUS Canada, sign up here:

ABOUT US

In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.

CONTACT US

info@ahuscanada.org