Media Coverage

Online

Yorkregion.com: Approval of Soliris thrills Vaughan family - March 13, 2013
Ottawasun.com: New drug helps young Ottawa girl fight ‘ultra rare’ disease - April 18, 2013
toronto.ctvnews.ca: New treatment helps boy battle rare life-threatening disease – April 26, 2013
Canada.com: Drug gives dad new lease on life - July 26, 2013
The Province.com: Funding call for drug that costs $450,000 per year per patient to treat ultra-rare disorder - July 25, 2013
Abbotsford Times: Funding call for drug that costs $450,000 per year per patient to treat ultra-rare disorder – July 26, 2013
Ottawa Citizen: Rare condition could leave 12-year-old a drug orphan - August 2, 2013
Ottawa Sun: Family worried province won’t fund daughter’s drug for rare disease - August 1, 2013
Global TV B.C.: Abbotsford man diagnosed with rare disease pleads for subsidized drug – August 1, 2013
Metro Ottawa: Life-changing drug may be denied to patients on $500,000 cost - August 8, 2013
Global News Manitoba: Winnipeg man pleads with province for treatment funding - October 24, 2013
CBC News Manitoba: Man with rare disease urges province to cover drug costs - October 31, 2013
Winnipeg Free Press: Transcona man fighting for drug coverage - November 1, 2013
CTV News Winnipeg: Man says costs of drug to help keep him alive not covered - November 6, 2013
Winnipeg Sun: Expensive drug approved to fight rare ailment - November 26, 2013
Brampton Guardian: Brampton man urges province to fund life-saving drug - February 27, 2014
Mississauga.com: Local man urges province to fund life-saving drug - February 27, 2014
Caledon Enterprise: Local man urges province to fund life-saving drug - February 27, 2014
Brant News: Brampton man urges province to fund life-saving drug – February 27, 2014
Global News
Plea for rare disease drug – April 9, 2014
iNews880.comAlbertans in need of expensive medication – April 12, 2014
630 CHEDAlbertans in need of expensive medication – April 12, 2014
Edmonton Journal: Harry Ainlay students petition the government to cover medication for rare disease - May 9, 2014
Edmonton Examiner: Harry Ainlay high schoolers gather signatures after parent falls ill with rare blood disorder - May 15, 2014
Canada.com: Petition fights for mom with rare disorder - May 10, 2014
Yorkregion.com: Markham woman, family struggle for lifesaving drug - November 6, 2014
TheStar.com: Ontario agrees to fund lifesaving drug for 6 months - November 15, 2014
Metronews.ca:Ontario agrees to fund $500K life-saving drug for 6 months - November 15, 2014
Torontoist.com: Weekend Newsstand – November 15, 2014
OurWindsor.ca: Ontario agrees to fund life-saving drug — for 6 months – November 15, 2014
InsideHalton.ca: Ontario agrees to fund life-saving drug — for 6 months – November 15, 2014
Yorkregion.com: Ontario agrees to fund live-saving drug – for 6 months - November 15, 2014
News in Port Colborne & Wainfleet: Ontario Health Care Again Poses Serious Obstacle to Funding Medication For Chronic, Life-Threatening Disease  – November 23, 2014
Brampton Guardian: Man with rare disease petitions MPP for access to drug - November 26, 2014
Inside Halton: Man with rare disease petitions MPP for access to drug - November 26, 2014
Our Windsor: Man with rare disease petitions MPP for access to drug - November 26, 2014
Mississauga.com: Man with rare disease petitions MPP for access to drug - November 26, 2014
Sachem.ca: Fighting for a better quality, longer life - December 2, 2014
TheStar.com: Toronto woman with rare disease fights province for life-saving but costly drug – December 4, 2014
Toronto Sun: Libs pick winners and losers for costly drugs - January 14, 2015
Toronto Sun: Drug approval process leaves patients in the lurch  - January 17, 2015
Bradford Times: The quest for Soliris – February 19, 2015
Kitchener Citizen: aHUS patients and their families to lobby Queen’s Park to cover cost of life-saving drug – February 19, 2015
CTV News: Ontario to provide interim funding for patients with ultra-rare disease - February 25, 2015
CTV News London: Ontario to provide interim funding for costly drug used to treat rare condition - February 25, 2015
Global News: Ontario approves costly funding for drug to treat rare condition – February 25, 2015
Winnipeg Free Press: Ontario to provide interim funding for costly drug used to treat rare condition – February 25, 2015
Waterloo Record: Ontario to fund costly drug on interim basis – February 25, 2015
Guelph Mercury: Ontario to fund costly drug on interim basis – February 25, 2015
Yahoo News: Ontario to provide interim funding for costly drug used to treat rare condition – February 25, 2015
CFRA News Talk 580: Ontario to provide interim funding for costly drug used to treat rare condition – February 25, 2015
CFRB News Talk 1010: Ontario to pay for ‘world’s most expensive drug’ – February 25, 2015
Globe and Mail: Ontario to fund $700,000-a-year drug for rare, life-threatening illness - February 25, 2015
Global News: Ontario approves costly funding for drug to treat rare condition – February 25, 2015
Yahoo News: Ontario to fund expensive Soliris drug on interim basis – February 25, 2015
Brampton Guardian: Brampton man with rare disease says Queen’s Park funding needs charity – March 2, 2015
Markham Economist & Sun: Markham family applauds rare disease funding – March 10, 2015

Print

Vaughan Citizen: Drug approval thrills Vaughan family - March 20, 2013
Ottawa Sun: Help fighting long odds - April 19, 2013
Vancouver Province: Drug gives dad a new lease on life - July 26, 2013
Abbotsford Times: Drug-funding frustrations - August 1, 21013
Metro Ottawa: Province balks at funding drug ‘that can save a life’ - August 8, 2013
Brampton Guardian: Local man urges province to fund life-saving drug - February 28, 2014
Edmonton Journal: Petition fights for mom with rare disorder - May 10, 2014
Edmonton ExaminerStudents petition for drug - May 14, 2014
Markham Economist & Sun: Woman, family struggle for lifesaving drug - November 6, 2014
Metro News: Life-saving drug funded – for 6 months – November 18, 2014
Toronto Star: Province agress to six months of funding for a lifelong medical fight – November 18, 2014
Toronto Star: Toronto woman with rare disease fights province for life-saving but costly drug- December 5, 2014
Toronto Sun: Russian roulette of drug programs - January 14, 2015
Ottawa Sun: Russian roulette of drug programs - January 14, 2015
Toronto Sun: Drug approval process leaves patients in the lurch - January 18, 2015
Bradford Times: The quest for Soliris - February 19, 2015
Kitchener Citizen: aHUS patients and their families to lobby Queen’s Park to cover cost of life-saving drug - February 19, 2015
Waterloo Record: Ontario to fund costly drug for rare condition - February 26, 2015
Globe and Mail: Ontario to fund drug for rare illness – February 26, 2015
Brampton Guardian: Brampton man with rare disease says Queen’s Park funding needs clarity – March 2, 2015

Broadcast

Ottawa Sun: New drug helps young ottawa girl fight ultra rare disease – April 18, 2013
CTV News Toronto: New treatment helps boy battle rare lifethreatening disease - April 26, 2013
Global TV B.C.: Abbotsford man diagnosed with rare disease pleads for drug - August 2, 2013
CBC News Winnipeg: October 31, 2013
CTV Edmonton: March 3, 2014


Global National News: April 9, 2014
CTV Edmonton: May 9, 2014 
Sun News Network:  November 10, 2014
Sun News Network: November 11, 2014 
Sun News Network:
 November 13, 2014 
Sun News Network: November 17, 2014
CFRB:
 Jim Richards Showgram - November 18, 2014
CBC News: Toni Vernon on CBC Toronto - December 12, 2014
Sun News Network: December 15, 2014 
CHCH Hamilton: February 25, 2015 
CTV News Toronto: Ontario to provide interim funding for patients with ultra-rare disease – February 25, 2015
CP24 Toronto (simulcast of CTV Toronto segment): Ontario to provide interim funding for patients with ultra-rare disease - February 25, 2015
Radio-Canada Ottawa/Gatineau: February 25, 2015
Global Toronto: Ontario approves costly funding for drug to treat rare condition – February 25, 2015
CBC Toronto: February 25, 2015 
CFRB News Talk Radio 1010: February 25, 2015 
CBC Metro Morning: February 26, 2015 
CKTB 610 Radio: February 26, 2015