Brochure
aHUS Brochure – Bilingual
Fact sheet
aHUS Fact Sheet – as of March 2015
Ontario Exceptional Access Program Criteria
Eculizumab for aHUS – Ontario EAP Criteria (March-2016)
Eculizumab for aHUS – Ontario EAP Criteria (Nov. 2018)
aHUS Patient Input Program:
John Bylok of Bylok and Associates has been interviewing many patients in Canada and has summarized his findings in the following documents:
2014: PatientinputSurvey2014
2015: PatientInputSurvey2015
2016: PatientInputSurvey2016
The aHUS Alliance has compiled a list of publications on aHUS: aHUS Alliance publications on aHUS and Published Clinical Research Articles
Biomedcentral: http://thrombosisjournal.biomedcentral.com/articles/10.1186/s12959-016-0114-0
Atypical HUS Clinical Channel (educational videos): https://www.youtube.com/user/aHUSclinical
Atypical HUS Patient Voice (Videos): atypical HUS patient voice
Conclusions from a “Kidney Disease: Improving Global Outcomes” (KDIGO) Controversies Conference Nov. 2015
Complement-Mediated Kidney Diseases: aHUS and C3 glomerulopathy summary:
Genetics Home Reference: https://ghr.nlm.nih.gov/condition/atypical-hemolytic-uremic-syndrome
Clinical Characteristics and outcomes of Canadian patients with atypical Hemolytic Uremic Syndrome: https://journals.sagepub.com/doi/10.1177/2054358119897229