Resource Materials

aHUS Brochure – Bilingual

Fact sheet
aHUS Fact Sheet – as of March 2015

Ontario Exceptional Access Program Criteria
Eculizumab for aHUS – Ontario EAP Criteria (March-2016)
Eculizumab for aHUS – Ontario EAP Criteria (Nov. 2018)

aHUS Patient Input Program:
John Bylok of Bylok and Associates has been interviewing many patients in Canada and has summarized his findings in the following documents:

2014: PatientinputSurvey2014
2015:  PatientInputSurvey2015
2016:  PatientInputSurvey2016

The aHUS Alliance has compiled a list of publications on aHUS: aHUS Alliance publications on aHUS  and   Published Clinical Research Articles


Atypical HUS Clinical Channel (educational videos):

Atypical HUS Patient Voice (Videos):  atypical HUS patient voice

Conclusions from a “Kidney Disease: Improving Global Outcomes” (KDIGO) Controversies Conference Nov. 2015
Complement-Mediated Kidney Diseases: aHUS and C3 glomerulopathy summary:

Genetics Home Reference:

Clinical Characteristics and outcomes of Canadian patients with atypical Hemolytic Uremic Syndrome: