Resource Materials

Brochure
aHUS Brochure – Bilingual

Fact sheet
aHUS Fact Sheet - as of March 2015

Ontario Exceptional Access Program Criteria
Soliris-aHUS-Ontario-EAP-Criteria-March-2016
Soliris aHUS Ontario EAP Criteria-Sept.-2017 starting at page 50-57

aHUS Patient Input Program:
John Bylok of Bylok and Associates has been interviewing many patients in Canada and has summarized his findings in the following documents:

2014: PatientinputSurvey2014
2015:  PatientInputSurvey2015
2016:  PatientInputSurvey2016

The aHUS Alliance has compiled a list of publications on aHUS: aHUS Alliance publications on aHUS

Biomedcentral: http://thrombosisjournal.biomedcentral.com/articles/10.1186/s12959-016-0114-0

Atypical HUS Clinical Channel (educational videos):  https://www.youtube.com/user/aHUSclinical

Atypical HUS Patient Voice (Videos):  atypical HUS patient voice

Conclusions from a “Kidney Disease: Improving Global Outcomes” (KDIGO) Controversies Conference Nov. 2015
Complement-Mediated Kidney Diseases: aHUS and C3 glomerulopathy summary:

Genetics Home Reference: https://ghr.nlm.nih.gov/condition/atypical-hemolytic-uremic-syndrome