About Us

aHUS Canada is a not-for-profit organization. Formed in November 2012, the mission of the organization is to support patients and families living with atypical Hemolytic Uremic Syndrome.

aHUS is a very rare and life-threatening genetic condition. In those living with aHUS, part of the immune system (known as the complement system) is uncontrolled. As a result, the immune system is always active, attacking the body’s cells. This can lead to serious problems such as blood vessel damage, abnormal blood clotting, and damage to major organs, including the kidneys, brain, and heart.


In addition to providing support to patients and caregivers, aHUS Canada strives to:

  • connect those affected by the condition to establish a Canadian aHUS community
  • build public awareness and understanding of this very rare and potentially fatal disease
  • advocate for the best possible care and treatment for patients

aHUS Canada is supported by corporate and private donors.  We have received unrestricted educational grants from Alexion Pharma Canada Corp. in the past.