Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.
Drug approval process leaves patients in the lurch Toronto Sun – January 17, 2015
Libs pick winners and losers for costly drugs Toronto Sun – January 14, 2015
Fighting for a better quality, longer life Sachem.ca – December 2, 2014
aHUS Canada is pleased to share some positive news from England today – the National Institute for Health and Care Excellence (NICE) Highly Specialised Technologies Evaluation Committee (EC) has issued a final draft guidance recommending that Soliris (eculizumab) be funded for all patients in England living with aHUS. NICE has recommended Soliris for use within the National Health Service (NHS) in England as the first and only treatment for patients with aHUS. NHS England should be commended for its previous decision to provide interim funding for Soliris to aHUS patients until NICE made this final recommendation…. » Read More
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In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.