PMPRB delays amended “Patented Medicines Regulations”

The PMPRB (Patented Medicine Prices Review Board) has announced that they have further delayed the enforcement of the amended “Patented Medicines Regulations” to July 1, 2021. This is good news for all Canadians since the regulations which were revised to lower drug prices, have instead created barriers to new medicines for rare diseases.

The regulations as newly drafted and subsequently revised are not in line with what most stake-holders (including the vast majority of patient groups) wanted to see because the concerns raised during consultations have been largely ignored.

The announcement of the delay can be viewed here:» Read More

aHUS Canada’s Response to the CBC

On Wednesday, June 24, 2015 and Monday, August 3, 2015, CBC reporter, Kelly Crowe, featured a story on “The National” entitled, “The Real Cost of the World’s Most Expensive Drug”.  aHUS Canada Board of Director, Sonia Girotto, has since provided a response to the CBC on behalf of aHUS Canada.

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