aHUS awareness day

aHUS awareness Day September 24, 2018

The third annual aHUS Awareness Day will be coming up on September 24, 2018. The aHUS Alliance is putting together another video slide show and this year’s video will give you a chance to thank / honor your favorite caregiver or advocate.  aHUS is a devastating disease and having support dealing... » Read More

 

Requesting participants for the aHUS Patient Input Program 2017

A program called the aHUS Patient Input Program was initiated in September 2014 and funded by Alexion Pharma Canada. Many aHUS patients and caregivers across Canada participated in the first three waves of interviews which were a great success. Thank you again for your help. The results of the 2014, 2015, 2016 interviews ​ have been summarized and the key findings are posted on our website: ...

Act now!

Click here to email your Premier and Health Minister and ask them to fund treatment for aHUS.

Click here to use our petition to call on government to fund eculizumab for aHUS (ONTARIO, ALBERTA & B.C. ONLY)

Click...

hands2

Get Involved!

Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.

crowd

Meet the Community

Although aHUS is an ultra-rare condition, there are others just like you across Canada who are fighting this disease. aHUS Canada wants you to know that you are not alone. aHUS patients and families in Canada share their stories… »Read more

 

SIGN UP

Stay connected with the aHUS community in Canada! To receive info and updates from aHUS Canada, sign up here:

ABOUT US

In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.

CONTACT US

info@ahuscanada.org