Rare Disease Day 2020

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The world will join together on 29 February to raise awareness for rare diseases like atypical Hemolytic Uremic Syndrome (aHUS). Click here to learn more about Rare Disease Day…. » Read More

aHUS awareness Day September 24, 2018

The annual aHUS Awareness Day will be coming up on September 24, 2018. The aHUS Alliance is putting together another video slide show and this year’s video will give you a chance to thank / honor your favorite caregiver or advocate.  aHUS is a devastating disease and having support dealing with it is crucial. Maybe it’s your husband, wife, mom, dad, brother, or sister? Or maybe a doctor or nurse, friend or co-worker?  And maybe you have more than one. Someone or something that helps you or your loved one fight aHUS…. » Read More