Get and Give Support


When dealing with any illness, it is common to feel alone and isolated – even more so when it comes to a rare disease. aHUS Canada can help connect Canadians living with this rare condition. We encourage patients to volunteer as mentors to provide support to other patients across the country. This support may come in the form of being a friend to a fellow aHUS patient, or sharing advice and guidance on how to cope with the condition.

If you are an aHUS patient, or caregiver to an aHUS patient, who is interested in acting as a mentor, please email

If you have been diagnosed with aHUS and would like to request a mentor, please email

Finding a specialist

If you are an aHUS patient who is having difficulty finding a specialist or accessing treatment, please contact us at  And, you can visit our listing of doctors who treat aHUS patients in Canada by clicking here.