Sept 24, 2020 is the 6th annual aHUS awareness day which was created by the aHUS Alliance. For more information about the day visit the Alliance website:
This years theme is “the key to wellness and well-being” while living with aHUS! Once again Jeff Schmidt has created a video with slides of aHUS patients from around the world sharing their key to wellness and well- being. Thank you Jeff!!
Click here on the link to watch the amazing video with all the slides from around the world.
Another great video that can help patients cope with their rare disease was made a few years ago but shares wonderful information to help with your key to wellness and well being: http://bit.ly/aHUSfamilySupport
The aHUS Alliance has also created a quarterly newsletter to stay informed about all the latest news regarding aHUS. For more info and to sign up to receive this letter visit: https://www.ahusallianceaction.org/keeping-ahus-connected/
If you have anything you would like to share with the Canadian aHUS community, please feel free to send an email to firstname.lastname@example.org We would love to get to know our community better and share your stories and experiences. Together we are stronger!