On February 25, aHUS Canada was joined by Ontario patients and families at the Legislature for a very successful action day. We held a press conference, attended and were introduced at Question Period, and met with several MPPs and government decision makers throughout the day. aHUS Canada would like to thank all who participated in these important activities!
Early in the day, a somewhat unexpected announcement was made. The Ministry of Health and Long-term Care in Ontario announced that the Province would provide “interim” funding for Soliris for aHUS patients who meet “defined clinical criteria.” Be aware that the news headlines are misleading. It is still unclear as to what these criteria are, and as such, which patients will be eligible for Soliris through the criteria. A temporary funding announcement is a significant first step towards reaching the long-term, permanent funding solution we urgently seek, as we feel it demonstrates that the Ministry of Health and Long-term Care sees the value in the strong clinical data supporting the efficacy and safety of Soliris.
aHUS Canada will continue to seek clarity from the Ministry of Health and Long-term Care on the interim funding criteria, and importantly, to collaborate with Government to ensure all aHUS patients, whose physicians determine can benefit from this life-saving treatment, can receive timely access to Soliris. aHUS Canada will provide updates as they become available.
