NORD 2013 Regional Patient Meetings for aHUS
In 2013, NORD will be offering regional patient meetings for the aHUS community. There are two meetings scheduled, with the first meeting scheduled for February 22-23 in Atlanta, GA (see the full brochure here).
The second meeting will be April 26-27 in Paramus, NJ.
These two-day meetings are a great way to meet other patients and their families. In addition, a physician will be in attendance at all meetings and will provide a disease update as well as being available for Q&A. Click here to see the brochure with full meeting agenda.
NORD will provide accommodations for one night at the hotel, including three meals, and a small travel stipend will be mailed after the meeting to each family.
If you would like more information on these upcoming meetings or would like to register please do not hesitate to contact me. You can reach Alexandra Freitas at afreitas@rarediseases.org or 203.744.0100 ext 226.