An international aHUS survey has been launched by RareConnect, a partnership of EURORDIS (Rare Diseases Europe) and NORD (National Organization for Rare Disorders). The poll was designed to help the aHUS community learn more about the diagnosis and consequences of the disease. The results of the survey may also offer insights for healthcare professionals, new patients, or patients who are currently undiagnosed. All responses will be kept anonymous.
aHUS Canada encourages Canadian patients and caregivers to respond to this brief survey, in order to help paint a detailed picture of life with aHUS. The survey is available in five languages, including English and French.
The results will be shared with the international aHUS community.