Sources de références

Les sites Web ci-dessous vous orienteront vers d’autres organismes canadiens et internationaux voués aux maladies rares, y compris certains organismes spécialisés sur le SHUa:

aHUS Alliance (Mondial): http://www.ahusallianceaction.org/
The aHUS Foundation (USA): http://atypicalhus.ning.com/
SHUa Bootcamp, en Francais – The aHUS Foundation: http://atypicalhus.ning.com/page/en-francais
aHUS UK (aHUS Patient Support Group): http://ahusuk.org/
aHUS Patient Support Group Australia: http://ahusaustralia.org.au/
aHUS Source: http://ahussource.com/
Réseau d’associations vouées aux troubles sanguins rares: http://www.nrbdo.ca/
CORD – Canadian Organization for Rare Disorders: http://raredisorders.ca/
RQMO – Le Regroupement Québécois des Maladies Orphelines: http://www.rqmo.org/accueil.html
NORD – National Organization for Rare Disorders (United States): http://www.rarediseases.org/
Rare Connect (aHUS Community): https://www.rareconnect.org/fr/community/syn-hemolytique-uremique-atyp
The Kidney Foundation of Canada: http://www.kidney.ca
The Canadian Society of Nephrology: https://www.csnscn.ca/
Canadian Association of Paediatric Nephrologists: http://www.capneph.ca/
Canadian Hematology Society: http://canadianhematologysociety.org/
Answering TTP: https://sites.google.com/site/answeringttp