Ottawa Sun – August 1, 2013
Family worried province won’t fund daughter’s drug for rare disease
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Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.
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In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.