aHUS Patient Input Program
John Bylok would like to take this opportunity to thank everyone (patients and caregivers) for participating in the recent round of interviews for the ‘aHUS Patient Input Program’…. » Read More
Our goal is to serve as a resource for all Canadians affected by aHUS, and form a nationwide community of aHUS patients.
John Bylok would like to take this opportunity to thank everyone (patients and caregivers) for participating in the recent round of interviews for the ‘aHUS Patient Input Program’…. » Read More
The world is joining together on September 24 to raise awareness for aHUS…. » Read More
On Wednesday, June 24, 2015 and Monday, August 3, 2015, CBC reporter, Kelly Crowe, featured a story on “The National” entitled, “The Real Cost of the World’s Most Expensive Drug”. aHUS Canada Board of Director, Sonia Girotto, has since provided a response to the CBC on behalf of aHUS Canada.
Alexion Pharma Canada initiated and funded a new program called the aHUS Patient Input Program in September 2014. Many aHUS patients and caregivers across Canada participated in the first wave of interviews which were a great success. Thank you again for your help. The results of these interviews have been summarized and key findings were presented at the annual aHUS Canada Patient Conference in May 2015 and will also be made available on our website…. » Read More
Dear Ontario aHUS families,… » Read More
Statement from the Office of the Hon. Dr. Eric Hoskins
Ontario’s Minister of Health and Long-Term Care… » Read More
Thousands of Ontarians support ultra-rare disease group’s plea for public funding of life-saving drug
Media Advisory – aHUS Canada Action Day
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In addition to providing support to patients and caregivers, aHUS Canada strives to connect those affected by the condition to establish a Canadian aHUS community, build public awareness and understanding of this very rare and potentially fatal disease and advocate for the best possible care and treatment for patients.