aHUS Patient Input Program

John Bylok would like to take this opportunity to thank everyone (patients and caregivers) for participating in the recent round of interviews for the ‘aHUS Patient Input Program’…. » Read More

aHUS Canada’s Response to the CBC

On Wednesday, June 24, 2015 and Monday, August 3, 2015, CBC reporter, Kelly Crowe, featured a story on “The National” entitled, “The Real Cost of the World’s Most Expensive Drug”.  aHUS Canada Board of Director, Sonia Girotto, has since provided a response to the CBC on behalf of aHUS Canada.

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Requesting participants for the aHUS Patient Input Program (HONORARIA PROVIDED)

Alexion Pharma Canada initiated and funded a new program called the aHUS Patient Input Program in September 2014.  Many aHUS patients and caregivers across Canada participated in the first wave of interviews which were a great success. Thank you again for your help. The results of these interviews have been summarized and key findings were presented at the annual aHUS Canada Patient Conference in May 2015 and will  also be made available on our website…. » Read More